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#LongCOVID
I have a much harder time thinking these days. There are times I'm so tired that when I go to talk, I speak gibberish. I forget words all the time. Trying to find the word is like dragging my brain through a glue trap. I have a hard time reading any one thing for very long. I'm glad I can still write coherently, but I don't seem able to write much after supper. I'm also finding that I have an extremely hard time concentrating on much of anything after supper. I'm afraid I'll have to stop signing up for online evening classes because I can barely stay alert during them. It feels an awful lot like when I had mono back in 1989. #LongCovidAwarenessDay #LongCovid #Covid #BrainFog
As far as I know, I've only had COVID once. It was a "mild" case. It didn't feel any worse than a cold and a bit of a sore throat for me. And even though I was fully vaccinated, took Paxlovid right away, and rested very very hard for three months (going to bed whenever I felt even the slightest bit tired), I still ended up with long COVID. I was strong and healthy before. I trained five days a week at the gym and yoga studio and hiked on weekends.
I'm scared shitless about getting COVID again. I'm one of the very few people I know who still masks regularly. #LongCovidAwarenessDay #LongCovid #Covid #MaskUp
I was an athlete for years. I did fitness competitions, trail running, mountain running, obstacle course races, interprovincial bicycling, hiking, and martial arts. I was a professional dancer, an aerialist, a model, and a LARPer. These days, I spend the vast majority of my time sitting down. I go to the gym a couple of times a week and try to go for walks every day, but if I exert too much or think too hard for too long, I'm exhausted.
This is not the normal feeling of being tired after a grueling workout. It's not a mind over matter thing. It's the kind of fatigue you feel when you're sick or dealing with a nasty injury. #LongCovidAwarenessDay #LongCovid #PostExertionalMalaise #ChronicIllness
It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid.
We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures.
Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection.
This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid.
It’s time we start processing the trauma of the pandemic and stop living in denial.
We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.
Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place.
Wear a mask. Stay home when sick. Clean and ventilate the air.
When we all agree to care about the air we share, we can begin to bring about real change.
https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid
"Live blog: International demonstrations ignite for Long COVID Awareness Day"
"Demonstrations for International Long COVID Awareness Day have sparked around the globe. Whether raising awareness about the disease in public or from their homes, people with Long COVID and their allies have raised their voices to demand recognition, research, treatments, support, and prevention of COVID-19 …"
Five years into the COVID-19 pandemic, this global public health crisis isn’t winding down, and more people are developing Long COVID each year.
This week for #LongCovidAwarenessDay, we’ve compiled a fact sheet of up-to-date statistics & citations on Long COVID.
Data is one of the most useful tools to strengthen understanding of #LongCovid: https://patientresearchcovid19.com/2025-long-covid-fact-sheet/
For all slides, visit our Instagram:
https://www.instagram.com/patientled/
For International #LongCovid Awareness Day from The Covid Safety Handbook team -- our audiobook chapter Long Covid and Relationships (free; listen in browser, download, and share as you need to).
More #Covid19 research information, of course it’s not good
https://www.vice.com/en/article/covid-19-left-20-of-men-with-erectile-dysfunction/
#CovidIsNotOver #LongCovid #sarscov2 @auscovid19
"Reinfection can trigger de novo long COVID or exacerbate the severity of existing long COVID"
h/t Ziyad Al-Aly, MD
https://www.nature.com/articles/s41591-024-03173-6 @longcovid
Berichten zufolge hielt der #BND schon 2020 ein "Lab Leak" des #Coronavirus für den wahrscheinlichen Ursprung der #Pandemie. Aber bisher gibt's für die These nur wenig wissenschaftliche Evidenz - dafür so manches, das gegen sie spricht. Und nicht nur das. Es ist auch eine Diskussion, von der wir wenig zu gewinnen haben. Andere Aspekte wären viel wichtiger, finde ich. Der Fokus auf #LongCovid und die Vorbereitung auf die nächste Pandemie, zum Beispiel:
https://www.spektrum.de/kolumne/covid-und-die-lab-leak-these-die-ewige-suche-nach-schuldigen/2257430
From Iraq:
Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316373
From the latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs
“If we were to see immune damage manifesting at a population level, it would look like what we’re seeing today: big waves of common illnesses. Unusual spikes of uncommon illnesses. Course reversal for previously declining and eliminated illnesses. An unexplained, global wave of sickness.”
https://www.thegauntlet.news/p/kids-keep-getting-sicker-as-evidence?utm_campaign=post
(Australia-wide survey)
Are you someone who is experiencing, treating or caring for someone with ME/CFS and/or #LongCovid ?
"The Australian e-Health Research Centre at CSIRO ... is conducting a survey to understand the research priorities of the community"
Link:
https://csiro.qualtrics.com/jfe/form/SV_50apVQ5MHXTReBw
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@auscovid19 #auscovid19
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I wrote a guest article for Healthy Debate that looks at why we need mandatory masks in healthcare, why surgical masks aren’t enough, and how the mounting threats to public health are putting lives at risk.
If you’re a healthcare worker, mask up.
Show us you take your oath to “do no harm” seriously
https://healthydebate.ca/2025/03/topic/wear-mask-plea-health-care-workers/
This is excellent.
Six years into this pandemic, you’d think people would want their beliefs to match reality.
I don't know about you, but I long for some cognitive...consonance.
https://healthydebate.ca/2025/03/topic/denial-airborne-covid-transmission/
Today marks the five year anniversary of Covid being declared a pandemic. Some things I want people to remember:
The threat is not gone. People are still dying and becoming disabled every single day
COVID is airborne. It’s always been airborne. Droplet transmission was pushed incorrectly & then doubled down on for economic reasons. If governments admit it’s airborne, they have to spend money upgrading air quality and providing respirators etc.
The only way to avoid Long Covid is to not get Covid.
A well fitted respirator like an N95 offers excellent personal protection
Mask mandates belong in healthcare
If you’re not masking for your patient, you’re abdicating your responsibility to do no harm
It costs nothing to open a window and it will improve ventilation and reduce odds of viral spread. Air purifiers work well too
COVID is a social justice issue. Masks, tests, air filters, paid time off… these things all cost money. The disease disproportionately impacts those who are most vulnerable and multiple marginalized
Repeat infections don’t make you stronger. They don’t give you immunity. They actually harm your brain, heart and immune system. They’re also NOT inevitable
Kids are harmed by COVID too. They need the adults to protect them. We need clean in schools and on school buses
We went “back to normal” for capitalism. It wasn’t because it was safe. It wasn’t because there was a cure. Governments and those in power Are willing to sacrifice us to keep end stage capitalism afloat a little longer
Repeat infections are NOT inevitable. We can still curb the spread. We don’t have to accept constant sickness and disability as our new normal.
May we be in a much better place five years from now than we are today.
If you know someone suffering from Long Covid, reach out to them. Ask them how you can support them. Remind them they’ve not been forgotten. Wear a mask for them. They are counting on you.
Heres some updated information on how to test for #COVID that you might find useful and some tips on how to recover to lessen the effects of #longcovid
Also you should wait 30 minutes to 1 hour to drink, eat, or smoke/vape before you test.
The #LongCovid Symptom Diary was created to support patients by providing them with a tool to track all aspects of their disease, and this includes keeping track of the use of medication, supplements, and treatments.
Having a clear overview of this can help patients get more clarity on what works, what doesn’t, and how different treatments interact. It also provides a valuable record to share with doctors, which can lead to better care decisions.
